TriNetX - sporedata/researchdesigneR GitHub Wiki
General description
It is a global collaborative clinical research platform providing access to real-time electronic medical records (EMRs). TriNetX provides data from more than 400 million patients from 30 countries. It collects de-identified, HIPAA (Health Insurance Portability and Accountability Act) compliant data from a network of healthcare organizations, including community hospitals, physician practices, and academic medical centers. The data includes demographics, diagnoses, procedures, medications, laboratory testing, vital signs, as well as genomic information.
Clinical areas of interest
- Any conditions treated in an in-hospital or ambulatory surgery environment
Variable categories
- Data linking
- Lab results
- Oncology
- Tumor registry
- Demographics
- Longitudinal patient history
- Patient location
- Vitals
- Diagnoses
- Medications
- Procedures
- Genomics
- Mortality
- Provider Notes (NLP)
- Socio demographic
- Clinical diagnosis and procedures
- Lab exams
- Medications
Linkage to other datasets
- Not applicable
Limitations
- No in-hospital mortality data, which can lead to immortal time bias for conditions/procedures with high mortality rates.
- Mortality variable indicates whether the patient died on a given year, but does not specify any indication of date.
- Lab and drug data are not standardized.
Potential connections to methods
Related publications
https://sci-hub.scihubtw.tw/10.1016/j.dhjo.2020.100942
https://sci-hub.scihubtw.tw/10.1016/j.bbi.2020.06.020