SRTR - sporedata/researchdesigneR GitHub Wiki

General description

The Scientific Registry of Transplant Recipients (SRTR) provides accurate, clear, and timely information on the status of solid organ allocation and transplantation and the transplantation system in the United States. Many of the data items gathered by OPTN on all solid organ transplant applicants, donors, and recipients in the United States from 1987 to the present are included in the SRTR standard analysis files (SAFs). Solid organ transplantation data, including information on heart, lung, kidney, pancreas, liver, intestines, and multi-organ transplants, is provided by SRTR SAFs. As mentioned here, these statistics are augmented with information from other sources.

The SAFs are presently only accessible in SAS format and are issued quarterly (in March, June, September, and December each year). The SAFs contain files categorized according to candidate, donor, transplant, and transplant follow-up data. Candidate files contain information on the candidate's status history and justification; donor files contain data on the disposition of deceased donors and living donors; transplant files contain summaries of candidate, donor, and follow-up information; recipient histocompatibility and cross-match data; and transplant follow-up files contain data on the patient's status, immunosuppression, malignancy, and malignancy treatment. All files come with an electronic data dictionary and may be connected at the person level.

Variable categories

Limitations

Text fields and geographic information are generally absent from the SAFs.
Supplemental files with some non-SAF data items, including patient-level ZIP codes, may be made available upon request. These might result in significant expenses and may need approval.

Related publications

Website

SRTR