SEER - sporedata/researchdesigneR GitHub Wiki

General description

The Surveillance, Epidemiology, and End Results (SEER) Program is run by the National Cancer Institute (NCI) and is a key source for cancer statistics (cancer incidence and survival) in the United States. Currently, SEER represents about 48% of the U.S. population (42% of Whites, 44.7% of African Americans, 66.3% of Hispanics, 59.9% of American Indians and Alaska Natives, 70.7% of Asians, and 70.3% of Hawaiian/Pacific Islanders), gathering data on cancer incidence, survival, and patient demographics from various cancer registries.

Since it collected its first data on cancer cases on January 1, 1973, SEER continuously expands its scope, contributing significantly to cancer surveillance and research efforts in the U.S, in an effort to reduce the burden of cancer among the U.S. population. The data collected includes information on patient demographics, first course of treatment, patient survival, and tumor characteristics (primary tumor site, tumor morphology and stage at diagnosis), and follow-up for vital status making it the only comprehensive resource in the U.S. that incorporates cancer stage at diagnosis and patient survival data.

SEER's mortality data is sourced from the National Center for Health Statistics, and its population data for calculating cancer rates comes from the Census Bureau. Its data is updated annually and is available in as a public service in print and electronic formats to support researchers, health professionals, and policymakers.

Variable categories

  • SEER has information on patient demographics, primary tumor site, tumor morphology and stage at diagnosis, first course of treatment, and follow-up for vital status for persons with cancer.

Related publications

Data access

More information about SEER can be found at https://seer.cancer.gov/

To access SEER data, visit https://seer.cancer.gov/data-software/