PROMIS - sporedata/researchdesigneR GitHub Wiki

General description

The Patient-Reported Outcomes Measurement Information System (PROMIS) is a set of person-centered measures that assesses and monitors mental, physical, and social health in adults and children for use with the general population and those living with chronic conditions.

1. Adult Assessment

PROMIS developed self-report measures (available in Spanish and many other languages) for adults for behaviors, feelings, functions, and symptoms.

2. Pediatric Assessment

PROMIS developed self-report pediatric measures (available in Spanish and many other languages) for children ages 8-17 and parent proxy-report measures for children ages 1-17 for behaviors, feelings, functions, and symptoms.

PROMIS offers three types of measures, all free, in multiple languages, and can be administered in various ways.

• Short Forms: fixed set of 4-10 items or questions selected from an Item bank per domain.
• Computer Adaptive Tests (CATs): items are dynamically selected for administration from an item bank based upon the respondent's previous answers. Usually, there are 4-12 items with high measurement precision.
• Profiles: fixed collection of short forms or CATs from multiple domains.
• Scales: fixed set of items for one domain. Items are not from an item bank.

However, two types of measures, Item banks (calibrated using IRT and so any subset of items can produce a T-score) and item pools (are not calibrated and so do not produce T-scores), are collections of items for a single domain and are not intended to be administered in their entirety to respondents.

Linkages

• PROMIS measures can be administered alongside Neuro-QoL™, ASCQ-Me®, and NIH Toolbox® measures that assess other aspects of health and function.

HealthMeasures serves as PROMIS's primary source and distribution hub, created and assessed using the National Institutes of Health (NIH) funding. HealthMeasures strives to enhance health outcomes research and promote PROMIS's adoption in research and clinical settings in partnership with the PROMIS Health Organization (PHO), a non-profit entity. The PHO provides comprehensive training for new and seasoned PROMIS users and is committed to incorporating patient perspectives in healthcare. Its diverse membership includes researchers, healthcare professionals, students, and industry representatives, all dedicated to elevating patient voices in medical discourse.

Related publications

• Foot and Ankle Outcome Instruments: Missing the Target
• Social Determinants of Health and Symptom Burden During Cancer Treatment
• Predictors of performance and perceived fatigability in people with multiple sclerosis
• Radiological hip shape and patient-reported outcome measures in healed Perthes' disease
• Patterns of Change in Pain-related Physical, Mental, and Social Health Outcomes in a Military Population
• Corticosteroid Injections for Symptomatic Treatment of Osteoarthritis of the Knee: A Pilot Blinded Randomized Trial
• Breast sensorisexual function: a novel patient-reported outcome measure of sexual sensory functions of the breast
• Health-related quality of life and vulnerability among people with myelodysplastic syndromes: a US national study
• Association of Grit With Postoperative Knee Outcomes and Physical Function After ACL Reconstruction in Adolescent Athletes
• Patient interpretations vary for questions in the Patient-Reported Outcomes Measurement Information System Upper Extremity
• Expanding the use of patient-reported outcomes (PROs): Screening youth with type 1 diabetes from underrepresented populations
• Predictors of Pain Management Strategies in Adults with Low-Back Pain: A Secondary Analysis of Amazon Mechanical Turk Survey Data
• Analysis of patient factors associated with selection of corticosteroid injection in the freezing phase of idiopathic adhesive capsulitis
• Crossing the cervicothoracic junction: an evaluation of radiographic alignment, functional outcomes, and patient-reported outcomes
• Prevalence and Burden of Illness of Rome IV Irritable Bowel Syndrome in the United States: Results From a Nationwide Cross-Sectional Study
• Post-traumatic stress disorder symptoms are frequent among inflammatory bowel disease patients of South Asian descent-A case-control study
• Medication Cost Concerns and Disparities in Patient-Reported Outcomes Among a Multiethnic Cohort of Patients With Systemic Lupus Erythematosus
• Effect of Insurance Reimbursement Status on Pre- and Postoperative Patient-Reported Outcomes Measurement Information System (PROMIS) Scores After Arthroscopic Rotator Cuff Repair

Data access

More information about PROMIS can be found at https://www.healthmeasures.net/explore-measurement-systems/promis/intro-to-promis

To access PROMIS data, visit https://www.healthmeasures.net/explore-measurement-systems/promis/obtain-administer-measures