ODC SCI - sporedata/researchdesigneR GitHub Wiki

General description

Spinal cord injury (SCI) produces a complex syndrome characterized by loss of motor control and mobility, loss of bladder, bowel, and sexual function, pathological pain, and loss of autonomy. The multifaceted nature of SCI presents a challenge for the translational pipeline. This SCI complexity problem can be conceptualized as a big-data issue: the field needs a forum for large-scale data-sharing and application of advanced analytics to catalyze SCI discoveries. The SCI research community is assembling an extensive database through collaborative and FAIR data sharing to address this challenge.

The Open Data Commons for Spinal Cord Injury (ODC-SCI) is a cloud-based, community-driven repository designed to share, store, and publish spinal cord injury research data, allowing researchers to access existing SCI data, contribute their own and publish with citable DOI. The spinal cord injury (SCI) community created the ODC-SCI, an extensive database, to mitigate dark data in SCI research. The ODC-SCI also aims to increase transparency with individual-level data, enhance collaboration, facilitate advanced analytics, and conform to increasing mandates by funders and publishers to make data accessible. Members of the ODC-SCI have access to a private digital lab space managed by the PI or multi-PIs for dataset storage and sharing. The ODC-SCI implements stewardship principles that scientific data be made FAIR (Findable, Accessible, Interoperable, and Reusable) and has been widely adopted by the international SCI research community.

Data access

More information about ODC-SCI can be found at https://odc-sci.org/