LPHI - sporedata/researchdesigneR GitHub Wiki
-
The Louisiana Public Health Institute (LPHI) is a nonprofit organization focused on improving public health and healthcare systems in Louisiana and beyond. Founded in 1997, LPHI collaborates with various stakeholders, including government agencies, healthcare providers, community organizations, and academic institutions, to address public health challenges and promote health equity for all Louisianans, regardless of where they live, work, learn, or play.
-
LPHI coordinates and manages public health programs and initiatives focusing on health systems development and community health improvement. By translating evidence into strategy, LPHI aims to optimize health ecosystems and uncover complementary connections across various sectors, combining social, economic, and human capital to align action for health.
LPHI utilizes standardized agreements and partnerships to facilitate data sharing and public health initiatives. They manage costs associated with data preparation, ensuring that financial barriers do not hinder research and public health improvements.
- Researchers engaging with LPHI's data and resources must adhere to strict compliance protocols and ethical guidelines.
- Proposals undergo thorough review processes to ensure the scientific merit and ethical use of the data.
- Data privacy and integrity are paramount, and researchers must commit to not redistributing or publicly posting data without proper authorization.
LPHI supports a wide range of research activities, including:
- Health Systems Development: Improving the infrastructure and efficiency of health systems.
- Policy and Equity Advocacy: Promoting policies that ensure health equity and addressing social determinants of health.
- Community Health Improvement: Addressing health disparities and promoting well-being at the community level.
- Data Accessibility: Enhances access to health data for research and public health initiatives.
- Financial Barriers: Manages costs associated with data preparation and sharing.
- Operational Challenges: Streamlines processes through standardized agreements and strategic partnerships.
- Cost Management: Covers costs related to data de-identification and anonymization.
- Independent Review: Ensures proposals undergo independent review for scientific and ethical integrity.
- Standardized Agreements: Employs consistent agreements for data use and sharing.
LPHI is focused on the following areas:
- HIV/STI
- Family Health
- Policy Equity
- Behavioural Health
- Health Communities
- Clinical transformation
- Health Service research
- Tobacco prevention and Control
- Data Preparation: Focuses on standardized datasets, which may limit custom data requests.
- Data Integration: Variability in data formats and standards can present integration challenges.
- Privacy Concerns: Ensures strict adherence to privacy regulations and data protection protocols.
- Access Restrictions: Data access is subject to compliance with regulatory and ethical standards.
- Sharing Health Data: The Why, the Will, and the Way Forward
- The Louisiana Public Health Institute: a cross-sector approach for improving the public's health.
- Qualitative Methodologies as an Intervention: Beyond Program Planning and Implementation
Academic and research institutions can access LPHI datasets by submitting a research proposal and undergoing the necessary compliance and review processes.
Researchers are required to submit an online application, including a detailed research proposal and conflict of interest disclosure. Access to data is granted upon approval by an independent review panel, ensuring responsible and ethical use of data.
[1] Grossmann C, Chua PS, Ahmed M, Greene SM. Sharing Health Data: The Why, the Will, and the Way Forward. 2023.
[2] Grossmann C, Chua PS, Ahmed M, Greene SM. CASE STUDY: The Louisiana Public Health Institute (LPHI) and The Greater New Orleans Health Information Exchange (GNOHIE) - Sharing Health Data. National Academies Press (US). 2022.