GNOHIE - sporedata/researchdesigneR GitHub Wiki
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The Greater New Orleans Health Information Exchange (GNOHIE) is a regional health information exchange (HIE) initiative that facilitates the electronic sharing of health information among healthcare providers in the Greater New Orleans area.
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Established to enhance the quality and efficiency of healthcare delivery in the Greater New Orleans area, GNOHIE is a collaborative effort spearheaded by the Louisiana Public Health Institute (LPHI) and includes health systems, state agencies, and community-based organizations.
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The primary goal of GNOHIE is to improve the quality, safety, and efficiency of healthcare by providing a secure platform for the exchange of patient health information across different healthcare providers and organizations.
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GNOHIE's technical infrastructure supports real-time data exchange, which is crucial for care coordination, especially for under-resourced populations. The initiative began as part of the Crescent City Beacon Community (CCBC) project and later transitioned to the Partnership for Achieving Total Health (PATH) to manage its operations. PATH ensures the sustainability of GNOHIE through membership dues and state and federal grants
- GNOHIE integrates various data sources, including electronic health records (EHRs), to facilitate seamless data exchange. The organization has developed standardized data-sharing agreements and governance policies to ensure compliance with regulatory standards and maintain data integrity.
- Researchers need to submit detailed proposals outlining their intended use of the data. These proposals are reviewed to ensure they meet ethical and regulatory standards. GNOHIE supports data requests through a structured process that ensures the protection of patient privacy and data security.
GNOHIE supports various research and clinical activities, such as:
- Care Coordination: Facilitating the transition of care from emergency departments to primary care providers.
- Clinical Outcomes Research: Analyzing treatment effectiveness and patient outcomes.
- Population Health Management: Monitoring health trends and outcomes across different demographics.
- Data Interoperability: Enhances data sharing across different healthcare systems and providers.
- Regulatory Compliance: Standardizes the interpretation and application of regulatory policies governing data use.
- Standardized Processes: Develops dependable utilities tailored to local health systems' needs.
- Real-Time Notifications: Implements automatic encounter notifications to improve care transitions.
- Technical Infrastructure: Establishes a robust platform for clinical data exchange.
GNOHIE hosts a wide range of health data variables, including:
- Demographics: Age, gender, ethnicity, etc.
- Health Behaviors: Lifestyle factors, medication adherence, etc.
- Clinical Information: Diagnoses, treatments, outcomes, etc.
- Administrative Data: Hospital admissions, billing information, etc.
- Data Complexity: Managing diverse data sources and formats can be challenging.
- Privacy Concerns: Ensures strict adherence to privacy regulations and standards.
- Access Restrictions: Requires compliance with institutional review processes and regulatory standards.
- Sharing Health Data: The Why, the Will, and the Way Forward
- Enabling Health Information Exchange to Support Community Goals
- A tale of two cities: Developing health information platforms for a learning health system in Austin and in New Orleans
- Utilizing actionable data analytics to support patient navigation enrollment and retention within federally qualified health centers
Academic and research institutions can access GNOHIE datasets by submitting a detailed research proposal and undergoing necessary compliance reviews.
Researchers must submit an online application, including a detailed research proposal and conflict of interest disclosure. Access is contingent upon approval, ensuring responsible data use.
[1] Grossmann C, Chua PS, Ahmed M, Greene SM. Sharing Health Data: The Why, the Will, and the Way Forward. 2023.
[2] Grossmann C, Chua PS, Ahmed M, Greene SM. CASE STUDY: The Louisiana Public Health Institute (LPHI) and The Greater New Orleans Health Information Exchange (GNOHIE) - Sharing Health Data. National Academies Press (US). 2022.