ESMÉ - sporedata/researchdesigneR GitHub Wiki
General description
The ESMÉ program, initiated in 2014 by Unicancer R&D and endorsed by all French Comprehensive Cancer Centers (FCCCs), is an autonomous academic endeavor aimed at consolidating real-world data on cancer patients in France. Its primary goal is to track the progression of patient care and treatment strategies on a large scale, incorporating both medical and economic perspectives.
This initiative operates through the ESMÉ database, which aggregates information from three main sources:
- The patient database, which compiles data from computerized patient records (DPI).
- The treatment database, which collects information on medication dispensation from pharmacies.
- The hospital database, which gathers data on hospitalizations.
Currently, three data platforms have been established focusing on:
- Metastatic breast cancer
- Ovarian cancer, and
- Metastatic non-small cell lung cancer
By utilizing anonymized data provided by healthcare professionals for various cancer types or treatment domains, the ESME platform offers a means to generate supplementary insights compared to those derived solely from randomized clinical trials. It is important to note that ESME does not generate new data; rather, it organizes existing data from participating FCCCs, university, and general hospitals into a unified format for enhanced understanding and analysis (referred to as longitudinal retrospective data).
Data access
More information about ESMÉ can be found at https://recherche.unicancer.fr/en/programs/esme/