CP CHILD A - sporedata/researchdesigneR GitHub Wiki

General description

The CP-CHILD-A dataset likely refers to data derived from the Caregiver Priorities and Child Health Index of Life with Disabilities (CP-CHILD) tool, which is designed to assess the health-related quality of life (HRQOL) of children with Cerebral Palsy (CP). This tool is used to collect comprehensive information on the daily functioning, well-being, and care needs of children with severe developmental and physical disabilities from the perspective of their caregivers.

Variables

  1. Demographics - CAge, gender, GMFCS level, caregiver details
  2. Health Conditions - Specific comorbidities or complications associated with the child's cerebral palsy.
  3. Overall HRQOL Score - Summed score representing overall quality of life.
  4. Domain-specific Scores - Personal care, mobility, emotional well-being, etc.
  5. Caregiver-reported Priority Areas - Key care areas highlighted by the caregiver.

Data Categories

  • Scoring System.
  • Caregiver Priorities - Improving communication abilities; Reducing physical discomfort or pain; Enhancing mobility and independence.
  • Demographic Variables - Age:; Gender; Severity of Cerebral Palsy; Caregiver Information (Age, relationship to the child, perceptions of the child’s health and care needs).
  • Domains of Health and Well-being - Personal Care; Positioning, Transfers, and Mobility; Comfort and Emotions; Communication and Social Interaction; Health and Safety; Overall Quality of Life (QoL).

Related publications

Data access

For more information on the CP-CHILD-A dataset, visit https://figshare.com/articles/dataset/CP-CHILD_zip/12554042?file=23383508