13.Qualitative06.Participatory research - sporedata/researchdesigneR GitHub Wiki

1. Use cases: in which situations should I use this method?

• Participatory designs require patients and other stakeholders (clinicians, hospital administrators, policymakers, companies including startups and large corporations) to provide input and actively participate in all phases of a research project. These include the design, funding attraction, data collection, results interpretation, dissemination (in both lay or technical language depending on the stakeholder), policy-making, and implementation science.
• The end-product is a set of results that are more relevant to patients, oftentimes focused on increasing their quality of life.

2. Input: what kind of data does the method require?

• Patients or other stakeholders interested in participating in the project.

3. Algorithm: how does the method work?

Model mechanics

Reporting guidelines

• PCORI Standards for Formulating Research Questions
• PCORI Standards Associated with Patient Centeredness

Data science packages

Suggested companion methods

• Qualitative methods in general, to both ensure that the research design is understood and that stakeholder can provide meaningful input to improve the value provided through the research

Learning materials

1. Books
2. Articles
   • Use and reporting of experience-based codesign studies in the healthcare setting: a systematic review
   • The Participatory Zeitgeist: an explanatory theoretical model of change in an era of coproduction and codesign in healthcare improvement
   • Common references to Qualitative methods

4. Output: how do I interpret this method's results?

Abstract examples

Typical tables and plots

5. SporeData-specific

Templates

Data science functions