13.Qualitative04.Shared decision making - sporedata/researchdesigneR GitHub Wiki

Potential applications to patient-centered research (use cases)

1. Use cases: in which situations should I use this method?

Whenever a patient and a clinician need to make a decision regarding a therapy, preventive measure, or diagnostic strategy - see Evaluating Shared Decision Making for Lung Cancer Screening
Can be combined with the elicitation of subjective probability distributions from clinicians and patients involved in the decision process - see Use (and abuse) of expert elicitation in support of decision making for public policy
Can involve cost-effectiveness analysis if the process will generate health policy making -- see Incorporating information about cost-effectiveness into evidence-based decision-making: the evidence-based practice center (EPC) model

2. Input: what kind of data does the method require?

Encounters between clinicians and patients

3. Algorithm: how does the method work?

Model mechanics

Previous systematic reviews have shown that when clinical decisions are shared with patients, patient satisfaction levels go up [1]. Sometimes outcomes also might improve, the latter likely being related to adherence to treatment. While some patients might prefer to have clinicians make choices on their behalf, even their choice to have others making decisions is a form of shared decision making.

Shared decision making is often facilitated by decision aids [3] and/or calculators based on machine learning models.

Reporting guidelines for Methods

Data science packages

Suggested companion methods

Qualitative and mixed methods research to investigate areas where shared decision making is more or less beneficial
Two-stage preference-based trials, where a regular parallel trial has a third arm where patients can choose to have or not shared decision-making sessions.
Machine learning models.

Learning materials

Books

Articles combining theory and scripts

A Review of Decision Aids for Patients Considering More Than One Type of Invasive Treatment [2].
Decision aids for people facing health treatment or screening decisions [3]
Common references to qualitative methods

4. Output: how do I interpret this method's results?

Mock conclusions or most frequent format for conclusions reached at the end of a typical analysis.

Tables, plots, and their interpretation

5. SporeData-specific

Templates

Data science functions

References

[1] Alegria M, Nakash O, Johnson K, Ault-Brutus A, Carson N, Fillbrunn M, Wang Y, Cheng A, Harris T, Polo A, Lincoln A. Effectiveness of the decide interventions on shared decision making and perceived quality of care in behavioral health with multicultural patients: a randomized clinical trial. JAMA psychiatry. 2018 Apr 1;75(4):325-35.

[2] Leinweber KA, Columbo JA, Kang R, Trooboff SW, Goodney PP. A Review of Decision Aids for Patients Considering More Than One Type of Invasive Treatment. Journal of Surgical Research. 2019 Mar 1;235:350-66.

[3] Stacey D, Légaré F, Lewis K, Barry MJ, Bennett CL, Eden KB, Holmes‐Rovner M, Llewellyn‐Thomas H, Lyddiatt A, Thomson R, Trevena L. Decision aids for people facing health treatment or screening decisions. 2017(4).