04.Data collection05.Registry - sporedata/researchdesigneR GitHub Wiki

1. Use cases: in which situations should I use this method?

1. Registries are an excellent source of real-world data, especially if they can be enriched by EHR, images, genomic data, national death index information, and other datasets.

2. Input: what kind of data does the method require?

1. Sites with the patient caseload
2. Sustained funding

3. Algorithm: how does the method work?

Describing in words

Describing in images

Describing with code

Breaking down equations

Reporting guidelines for Methods

• PCORI standards for Data Registries.
• PCORI standards for Data Networks as Research-Facilitating Structures.

Data science packages

Suggested companion method

• Causal methods
• Platform trials
• Computerized adaptive testing

Learning materials

1. Books *
2. Articles *

4. Output: how do I interpret this method's results?

Mock conclusions or most frequent format for conclusions reached at the end of a typical analysis.

Tables, plots, and their interpretation

5. SporeData-specific

Templates

Data science functions

References