NHATS Data dictionary - onetomapanalytics/Meta_Data GitHub Wiki
NHATS - Data dictionary
FQ - Facility Questionnaire IR - Interviewer Remarks SP - Sample person
| Section Name (Abbreviation) | SPβs Initial Round | Follow-up Round | Last Month of Life | Concept Area | Brief Description of Contents |
|---|---|---|---|---|---|
| Interview Setup (IS) | β | β | β | Personal Factors | Self or proxy respondent; reason for proxy; SP age and gender |
| Residence (RE) | β | β | β brief | Environment | Physical structure of residence; address where SP lives |
| Place of Death (PD) | -- | -- | β | Environment; Capacity | Where the SP died, whether the SP was awake and able to communicate during the last month of life, and whether the SP was able to get out of bed in the last month. |
| Quality of Care in the Last Month (LM) | -- | -- | β | Treatment | Quality of end-of-life care |
| Health Conditions (HC) | β | β | -- | Health Conditions; Treatment and Self-Care | Self-rated health; self-reported diseases & chronic conditions; hospital stays and surgeries; falls; depression; anxiety; sleep quality; COVID-19 (diagnosis, symptoms, health effects, vaccination, and attempts to get vaccinated R11) |
| Housing Type (HT) | β | β if moved | -- | Environment | Length of residence at place SP lives; description of type of place SP lives (including questions that trigger need for FQ administration); is place part of retirement community |
| Service Environment (SE) | β | β | -- | Environment | Asked only of persons living in residential care (excluding nursing homes): services available at place; services used by SP; does SP pay extra for services used |
| Household Members (HH) | β | β | -- | Personal Factors | Marital status; years together/when marriage ended; spouse/partner: gender, age, education, whether needs help with personal care, where lives if not in household; other household members: relationship to SP, gender, age |
| Children & Siblings (CS) | β | β | -- | Personal Factors | Children not in household: relationship to SP, age, city/state where live; All children: education, marital status, how many children & how many under age 18; SP any living sisters or brothers |
| Social Network (SN) | β | β | -- | Environment; Personal Factors | Up to 5 people SP talks with about important things: relationship to SP, gender, age, city/state where live |
| Home Environment (HO) | β | β | -- | Environment; Compensatory Strategies | Entrance: stairs, (if multi-unit shared),ramp; Features: elevator, stair lift, shared spaces for meals/socializing, number of floors, bedroom/kitchen/bath on same floor; Inside private space: private bathroom with shower/tub, bathtub/stall/grab bars; shower seat; raised toilet/grab bars, medical emergency system, private kitchen space, microwave |
| Environmental Modifications (EM) | β | β | -- | Environment; Compensatory Strategies | For modifications in HO: there when moved in or added, any added in last year, pay any of the cost of adding; pay anything for other devices that help with daily activities in last year; how much paid altogether in last year |
| Community (CM) | β | β | -- | Environment | Agreement with statements about community: know each other, willing to help, trust |
| Technological Environment (TE) | β | β | -- | Environment; Compensatory Strategies | Technology: cell phone, other phone, working computer; Use computer: in home, other places; Sent messages by email/texting; Gone on internet/online: grocery shopping, bills/banking, order/refill meds, visit social network sites (starting R3), visit with family or friends on video calls (R11), telehealth visit with medical providers (R11), contact medical providers, handle Medicare/insurance |
| Mobility Devices (MD) | β | β | β | Compensatory Strategies | Used: cane, walker, wheelchair (is it where SP lives), scooter (is it where SP lives) |
| Sensory and Physical Impairments & Symptoms (SS) | β | β | -- | Impairments & Capacity | Hearing; vision; chewing & swallowing; speaking & being understood; pain: limits activities, frequency of meds, location; breathing problems (limits activities); strength or movement shoulders, arms, hands, feet (limits activities); strength or movement hips, legs, knees, feet (limits activities); low energy/easily exhausted (limits activities); balance/coordination (limits activities) |
| Physical Capacity (PC) | β | β | -- | Capacity | Able to: walk 6 blocks/walk 3 blocks, climb 20 stairs/climb 10 stairs, lift and carry 20 lbs/10 lbs, kneel down/bend over, heavy object overhead/reach overhead, open sealed jar/grasp small objects |
| Cognitive Assessments: Proxy (CP) | β | β | β brief | Capacity | Overall memory rating; 8 items on changes in thinking/memory; behavior: getting lost, wanders off, able to leave alone, sees/hears things |
| Cognitive Assessments: Self (CG) | β | β | -- | Capacity | Self-rated memory (current, interferes activities, one year ago); date (mo/day/year) and day of week; 10-word immediate recall; clock-drawing test (moved to CD in R11); Numbers and Letters (R11); naming President and Vice President; 10-word delayed recall |
| Stroop Assessment (STROOP) | -- | β R2 only | -- | Capacity | Computerized Stroop test providing executive function assessment |
| Mobility (MO) | β | β | β brief | Activities: Self-care & Domestic | Going outside home/building: frequency of leaving home/building to go outside, frequency of mobility device use, help and who helps, frequency done by self, difficulty by self, unmet need for help; If multiunit: Frequency of leaving private space to go other areas in building; frequency leaving room where SP sleeps; Getting around inside home/building: frequency of leaving unit to go into other areas of the building (if in multi-unit building), frequency of leaving room where sleep (if never go out or go into building), frequency of mobility device use, frequency hold onto walls/furniture, help and who helps, frequency done by self, difficulty by self, frequency compared to a year ago, unmet need for help; Getting out of bed: frequency use cane/walker, help and who helps, frequency done by self; difficulty by self, unmet need for help |
| Duration of Mobility Accommodations (DM) | β | β | β | Activities: Self -care & Domestic | Duration of mobility help (getting outside, getting around inside, getting out of bed) and mobility device use (cane, walker, wheelchair, scooter). |
| Driving & Transportation (DT) | β | β | -- | Activities: Self -care & Domestic; Participation | Drive yourself: frequency, date or age drove last, driving situations people avoid (night, alone, busy roads, bad weather); How else get places: walk, ride (who gives SP ride), van/shuttle service, public transportation, taxi, other |
| Household Activities (HA) | β | β | -- | Activities: Self -care & Domestic | How did laundry (always by self, always with someone, someone else always did, it varied, not done): where done, who did with or for, reason someone else did with or for (health/functioning or other), difficulty by self, frequency compared to a year ago, unmet need (due to no help/difficulty); How did shopping for groceries or personal items (always by self, always with someone, someone else always did, it varied, not done): in person/online/both ways (R11), pay by check/cash/debit card/credit card, who did with or for, reason someone else did with or for (health/functioning or other), difficulty by self, frequency compared to a year ago, unmet need (due to no help/difficulty); How hot meals made (always by self, always with someone, someone else always did, it varied, not done): frequency restaurant meals/ eat -in/take out (not meals on wheels), who did with or for, reason someone else did with or for (health/functioning or other), difficulty by self, frequency compared to a year ago, unmet need (due to no help/difficulty); How handle bills and banking (always by self, always with someone, someone else always did, it varied, not done): who did with or for, reason someone else did with or for (health/functioning or other), difficulty by self, frequency compared to a year ago, unmet need (due to no help/difficulty); Handled less common money matters (opening/closing accounts, loans): did any of these; help and who helps |
| Self-Care Activities (SC) | β | β | β brief | Activities: Self-care & Domestic | Eating: frequency use adapted utensils, help and who helps, frequency by self, difficulty by self with adapted utensils if used, unmet need (due to no help/difficulty); Getting cleaned up: usually bath/shower/other, which most often, frequency use grab bars, frequency use shower or tub seat, help and who helps, frequency by self, difficulty by self with grab bars/shower or tub seat if used, frequency compared to a year ago, unmet need (due to no help/difficulty); Using the toilet: use a portable commode/disposable pads or undergarments/grab bars around toilet/raised toilet or seat, help and who helps, frequency by self, difficulty by self with grab bars/raised toilet or seat if used, unmet need (due to no help/difficulty); Getting dressed: use a button hook/reacher or grabber/special clothes, help and who helps, frequency by self, difficulty by self with special items if used,; frequency compared to a year ago, unmet need (due to no help/difficulty) |
| Duration of Self -Care Accommodations (DS) | β | β | β | Activities: Self-care & Domestic | Duration of self -care help (eating, getting cleaned up, using the toilet, or getting dressed) |
| Medical Care Activities (MC) | β | β | -- | Activities: Self -care & Domestic | Take medications prescribed by a doctor; How keep track of medications: (always by self, always with someone, someone else always did, it varied, not done): where get medicines, how get medicines (SP picks up, other picks up, delivery), frequency use reminders, help and who helps, reason someone else did with or for (health/functioning or other), difficulty by self, frequency compared to a year ago, unmet need (due to no help/difficulty); How handle medical care: regular doctor, in person/online/both ways (R11), seen in last year, how get to doctor, who takes SP, anyone sit in with SP and doctor during visits, who sits in (most often), does person who sits in help, remind, ask, help understand; Handling medical bills and insurance: change d plans in last year, help and who helps |
| Participation in Activities (PA) | β | β | β brief | Participation | Visit in person with friends/family not co -resident, health/functioning keep from doing ; transportation keep from doing; how important to SP; Attend religious services, health/functioning keep from doing ; COVID -19 kept from doing (R11); transportation keep from doing; how important to SP; Participate in clubs, classes, or other organized activities, health/functioning keep from doing; COVID -19 kept from doing (R11); transportation keep from doing ; how important to SP; Go out for enjoyment, health/functioning keep from doing; COVID -19 kept from doing (R11) ; transportation keep from doing; how important to SP; Work for pay or in a business SP owns, health/functioning keep from doing; COVID -19 kept from doing (R11) Do volunteer work, health/functioning keep from doing; COVID -19 kept from doing (R11) Provide care/look after an adult or child who cannot care for themselves, who was that; Go walking for exercise; Do vigorous activities What is favorite activity, health/functioning keep from doing |
| Rehabilitation (RH) | β R5 | β | -- | Treatment | Received rehab last year; Number of weeks/months last year; Goals; Devices or equipment recommended; Settings; Change in functioning during rehab; Reasons stopped; Change in functioning since rehab (starting in R5) |
| Smoking (SD) | β | β brief | -- | Personal Factors | Ever smoked, smokes now, cigarettes per day, age when first smoked regularly, age when last smoked regularly |
| Physical Performance Assessment Eligibility Questions (PE) | β | β | -- | Capacity | Grip strength: exclude if surgery/serious injury or flare -up of pain in both hands, exclude if surgery/serious injury or flare - up of pain in arm/shoulder on both sides, test on dominant hand if not excluded, test on other hand if dominant hand excluded; Chair Stands: exclude if surgery or serious injury on both hips, exclude if SP always uses mobility device to get out of bed or always has help to get out of bed says not able to get up out of chair by him/herself and without mobility devices (if used); Balance Stands: exclude if SP always uses mobility device to get out of bed or always has help to get out of bed says cannot stand without holding onto anyone or anything; Walking: exclude if SP uses wheelchair or scooter every time to get around home or building, exclude if SP says cannot walk a short distance in room by him/herself |
| Performance Activities Booklet | β | β | -- | Capacity | Balance Stands; Walking Course; Chair Stands; Grip Strength; Waist Circumference; Peak Air Flow |
| Blood collection (BC) | β R7 only | Impairments | Collection of dried blood spots to conduct assays (hemoglobin A1C, IL -6, CRP, and CMV) and store samples for future research | ||
| Height & Weight (HW) | β | β brief | -- | Personal Factors | Current weight; weight at age 50; lost 10 pounds in last year; trying to lose weight; current height, height at age 50 |
| Early Life (EL) | β | β brief | -- | Personal Factors | Born in US; State or country of birth; year or age came to US to live; health as a child; how well off financially when growing up; live with both parents to age 15; where lived at age 15; education; mother still living; father still living |
| Race, Ethnicity & Language (RL) | β | -- | -- | Personal Factors | Race; primary race if more than one; Hispanic ethnicity; (interview in Spanish); speak language other than English; how well understand English when spoken to; how well speak English |
| Veteranβs Status (VA) | β | -- | -- | Personal Factors | Served on active duty, period of service, active member of National Guard/military reserve |
| Well-Being (WB) | β | β | -- | Economic and Social Consequences | Frequency of feelings in last month: cheerful, bored, full of life, upset ; lonely (R11) ; Agreement with statements about life: meaning and purpose, confident, gave up trying to improve life, like living situation; Age SP feels; Agreement with statements: other people determine activities, I do what I want, I adjust to change |
| Insurance Plans (IP) | β | β | -- | Personal factors; Economic and Social Consequences | Prescription drug coverage; Medicare supplemental; Medicaid; TRICARE; long -term care insurance: services covered, premiums, how long had policy |
| Labor Force Participation (LF) | β | β | -- | Personal factors; Economic and Social Consequences | Status (working, unemployed, not in labor force); if working: hours per week, hours last week, payment schedule, amount of last paycheck, amount earned last month; occupation most of life; is work now different; does spouse work; spouse pay last month |
| Home Ownership (HP) | β | β | -- | Personal factors; Economic and Social Consequences | Own or rent; mortgage: paid off, payment amounts, time left, amount owed; present value of home; rent amount; is home public or low income housing |
| Income & Assets (IA) | β | β | -- | Personal factors; Economic and Social Consequences | Note: full section (F) administered in Rounds 1 and 5; brief section (B) administered in Rounds 3, 7, 9, and 11 forward. Sources of income: Social Security, SSI, Veteranβs Administration, pension, other retirement plans, mutual funds/stocks, bonds, checking account, savings/money market, CD, business/farm/real estate (F, B) ; Payment amounts in last month: Social Security, SSI, VA, pension (F) ; Other retirement plans: worth, amount withdrawn last month, amount withdrawn last calendar year (F) ; Mutual funds/stocks/bonds: worth; Checking/savings -money market/CD: worth; interest/dividend income in last calendar year from all mutual funds/stocks/bonds/bank accounts/CD ; Business/farm/real estate: worth if sold today, income in last calendar year (F) ; Total income last calendar year from all sources (F, B) |
| Car Ownership (CO) | β | β | -- | Personal factors; Economic and Social Consequences | Own cars/trucks/vans; how many; worth if sold today |
| Economic Well-Being (EW) | β | β | -- | Personal factors; Economic and Social Consequences | Credit card: usually pay off monthly, current balance, amount owed for medical care, paying medical bills over time and amount; Financial transfers: SP receives from children/relatives, who, amount last year; SP gives to children/relatives, who, amount last year; SP receives food stamps, other food assistance such as meals on wheels, energy assistance, food insecurity, problems paying rent/utility bills/medical or drug bills |
| Helpers (HL) | β | β | -- | Compensatory Strategies | For each helper (other than staff at residential care): schedule, days per week or month, hours per day, whether paid to help, sources of payment, amount paid by SP/family |
| LML Helpers (HM) | -- | -- | β R7 | For each LML helper: whether helper lives in the household, whether paid | |
| Modules | β | β | -- | Varies | Round 1: NLTCS screening questions (LS) Round 2: ACS Disability Questions (AD); Engagement in health care (EH); End of life plans and care (EP) Round 3 & 4: Pain (PN); Personality Traits (PT); Sleep (SL) Round 5: NLTCS screening questions (LS) Round 6: Trade-offs (TR); Medication Attitudes (MA); Sedentary Time (SY) Round 8: End of life plans and care (EP) |
| Clock Drawing (CD) | β | β | -- | Capacity | Clock-drawing test (moved from CG in R11) |
| Vision & Hearing (VH) | -- | β R11 | -- | Capacity | Whether person attempted vision and hearing activities |
| Vision & Hearing Booklet | -- | β R11 | -- | Capacity | Tablet-based Vision activities: distance and near acuity; contrast sensitivity; whether vision aids were worn for each activity Tablet-based Hearing activity: pure tone audiometry |
| Cogstate Battery (CB) | -- | β | R11 | -- | Capacity |
| Activity Watch (AG) | -- | β R11 | -- | Capacity | Whether person agreed to wear activity watch (administered to random sample) |
| Facility Questionnaire (FQ) | β | β | -- | Environment; Compensatory Strategies | All residential care places where SPs reside (including nursing homes): name and address, type of place, type of unit where SP lives, services available to persons at SPβs level of care; sources of payment for SP, amount paid in last month by source; total monthly payment, primary payer |
| Interviewer Remarks (IR) | β | β | -- | Home Environment; Interview Environment | Where interview occurred if not at SPβs home; Observed condition of home: flaking paint, pests, broken furniture, flooring, tripping hazards, clutter; Observed conditions around home: litter, graffiti, vacant houses, foreclosure signs; Observed condition of home exterior: windows, foundation, outside of home, roof, walking surfaces. Rounds 2 and forward added continuous sidewalks; Interviewer remarks on # of sessions to complete; SP understanding; help with interview; FQ in person or by phone. |
Note: Round number module added shown if added after R1. This table shows the original order of sections. See Table in Section 1.D NHATS Response to COVID-19 for section order differences between R1-R10 and R11 forward